World IBD Day is upon us again! This gives us an opportunity to reflect on the last year and consider how the ever-changing healthcare landscape impacts service provision and the experience of people living with Inflammatory Bowel Disease (IBD). IBD CNS report increasing challenges in delivering optimal care because of multiple factors, including the current socio-political climate, increasing demand, and stretched resources.
Living well with IBD is a key priority and desired outcome for patients and their healthcare teams. We are seeing greater investment into researching areas of importance to IBD patients and, with that, a better understanding of, for example, the impact of diet, the role of the microbiome in health (and ill health) and our patients unmet psychological needs - as well as an increasingly crowded treatment landscape. Increased choice and knowledge are positive for patient care but also creates the need for services to adapt and prioritise. It will often fall to nursing teams to innovate and create change.
IBD UK are currently conducting a UK-wide patient survey and ask all IBD teams to encourage patients to engage with this and share their experience of living with IBD. Later in the summer, IBD teams will have the opportunity to benchmark their services against the National IBD Standards with the Service Survey. Both these surveys will give teams great data to celebrate and showcase excellence - and to highlight to managers where there are opportunities to improve services and patient experience.
The patient survey can be accessed here: https://surveys.ibdregistry.org.uk/redcap/surveys/index.php?s=ACX8DLCPJ4
In the meantime, please do wear purple to mark World IBD Day to help raise awareness and show support for the 500,000 people living with IBD across the UK.
Living well with IBD is a key priority and desired outcome for patients and their healthcare teams. We are seeing greater investment into researching areas of importance to IBD patients and, with that, a better understanding of, for example, the impact of diet, the role of the microbiome in health (and ill health) and our patients unmet psychological needs - as well as an increasingly crowded treatment landscape. Increased choice and knowledge are positive for patient care but also creates the need for services to adapt and prioritise. It will often fall to nursing teams to innovate and create change.
IBD UK are currently conducting a UK-wide patient survey and ask all IBD teams to encourage patients to engage with this and share their experience of living with IBD. Later in the summer, IBD teams will have the opportunity to benchmark their services against the National IBD Standards with the Service Survey. Both these surveys will give teams great data to celebrate and showcase excellence - and to highlight to managers where there are opportunities to improve services and patient experience.
The patient survey can be accessed here: https://surveys.ibdregistry.org.uk/redcap/surveys/index.php?s=ACX8DLCPJ4
In the meantime, please do wear purple to mark World IBD Day to help raise awareness and show support for the 500,000 people living with IBD across the UK.
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